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Clinician orientation sheet

NM_018489.3:c.7927C>T

Concise orientation only. Dates, normal findings, uncertainty, source boundaries, and longitudinal context remain in the complete profile.

Molecular result and profile context

Report transcript + cDNA
NM_018489.3:c.7927C>T
Report protein consequence
p.Pro2643Ser
Zygosity
Heterozygous
Molecular consequence
Missense
Laboratory classification
Variant of uncertain significance
Classification source
Family-reported formal result
Inheritance
Not established
Relevant additional finding
Separate NFIB finding reported; contribution to macrocephaly remains separate
Normalized MANE/map notation
NM_018489.3:c.7927C>T · NP_060959.2:p.Pro2643Ser
Variant type
Missense
Sex
Male
Age group
Ages 1–5
Protein position
Amino-acid substitution · aa 2,643

Approved public summary

This is the story of a boy in the 1–5 age group with an ASH1L missense variant classified as a variant of uncertain significance. He has hypotonia, autism, a history of substantially delayed speech that is now developing into functional spoken communication, a history of severe food-allergy-associated gastrointestinal illness, chronic trigger-associated rhinorrhea and open-mouth sleep, reduced pain response, and soft, translucent, stretchy skin in the context of a maternal connective-tissue history. He also has macrocephaly, which his family relates to a separate NFIB finding. Over the most recent six months, he has made major gains in communication, regulation, safety, toileting, motor skills, navigation, and preschool participation. His family describes him as calm, affectionate, physically strong, active, and increasingly independent in everyday routines.