EVIDENCE CHAPTER 01

A skill may still be present even when it becomes harder to use.

Behavior, body state, reliable capacity, and what changes access to a skill.

THE LENS THAT CHANGED MY THINKING

Behavior is real—and it can also be a readout of body state.

Autism, ADHD, anxiety, rigidity, repetitive movement, sensory seeking or avoidance, impulsivity, social drive, and reduced danger awareness are genuine neurodevelopmental domains. They deserve direct support.

But a new or extreme behavior can also be the first outward sign that pain, sleep, bowel retention, hearing, airway, seizures, illness, heat, fatigue, puberty, medication, autonomic activation, or communication access changed. Severe teething pain preceded head-banging in one otherwise quiet young history. In a broader adult history supported by available records, sweating and breathlessness moved beside self-harm, aggression, and a collapse from sentences to sounds.

Neither example makes every behavior medical. Both demand the same sequence: define baseline, capture the change, test body and environmental candidates, support communication and safety, and record what returns. That distinction—capacity versus access—runs through every section that follows.

WHAT THE INFORMATION CAN SHOW + NEXT MEASUREMENTSWhat this chapter supports, what remains unknown, and what to measure next

METHODS & TERMS

The sitewide evidence rules are kept in one place.

Methods & Privacy explains the evidence-label definitions, count rules, missing-information framework, and privacy approach used throughout ASH1L.org.

A genetic result tells us where to look. A life course tells us what the gene may actually mean for a person.

— Abbey