EVIDENCE CHAPTER 04

The timing of a change can be as important as the symptom itself.

Brain state, ENT, oral, GI, memory, motor function, and recovery on one timeline.

KEEP THE SYSTEMS SEPARATE

ENT, GI, memory, brain state, oral function, and motor recovery belong on the same timeline—but never under the same heading.

Timing can make a history scientifically useful. It does not show that the systems share one cause, and a normal result in one system does not close a different question.

WHAT THE INFORMATION CAN SHOW + NEXT MEASUREMENTSWhat this chapter supports, what remains unknown, and what to measure next

METHODS & TERMS

The sitewide evidence rules are kept in one place.

Methods & Privacy explains the evidence-label definitions, count rules, missing-information framework, and privacy approach used throughout ASH1L.org.

A genetic result tells us where to look. A life course tells us what the gene may actually mean for a person.

— Abbey